Today we met with Mac’s Oncologist and Neurosurgeon. We have
taken Mac off the oral chemotherapy he had been on since his cancer has built
of a resistance to it and it is no longer effective. We are going to go ahead
with surgery to remove what we can of the new tumors and send off samples to
Texas for some tumor marker testing. I am not sure of an exact date of surgery
yet, but if surgery goes as expected he would recover for one night in the Pediatric
Intensive Care Unit and then be moved elsewhere for another 3 nights. Until the
genetic testing information is available we are going with a new protocol that
as his doctor explained “is just picked off the shelf”. He is starting today on
his new medication, Metformin. My understanding is that this is generally used
to treat diabetes but has started to show positive results in cancer patients.
He cannot start on all of the new drugs at once in case there is a reaction. It
is much like introducing babies to food. You can only do one at a time so that
if there is a reaction you know which one caused it.
I will post as soon as surgery is scheduled. Thank you for
your continued support.
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