04/23/2013

I wanted to take a quick minute to thank everyone for the overwhelming support and kind words we have received over the last week. We will continue to need your help and support during the last days of Mac’s life and even more in the years to come when we need to learn how to live in a world without him. He has always been the final piece in the puzzle of our family. I will never understand why Mac was chosen to take this journey or how we got so blessed as to have him in our family. We seem to have gotten control over his seizures and a good schedule for his medications to keep him as comfortable as possible. He was able to open his eyes yesterday for a couple of minutes and played a few rounds of thumb wrestling. Liam has been very quiet this past week. We have talked with him about what is going on but I think that he is trying to be the rock of the family and be strong for us all. I hope he will be able to talk to someone soon about his feelings but don’t know how to get him there yet. His social worker is coming Thursday so she may be able to get him to open up. I will try to keep everyone updated as best I can, but I am physically and emotionally exhausted and find it takes all my strength just to get through each day. I am struggling to even understand the emotions of fear, pain, and anger I feel and am at a loss for words as to describe our current world.