Sunday, April 15, 2012

What a week

Well the last week has been a roller coaster ride. We were thrilled to have Mac released from the hospital on Easter. We were able to enjoy the afternoon together not doing much of anything. It was great! Wednesday, April 11th, was Mac's last day of radiation. We were so looking forward to getting a break for a few days from the daily trips to the hospital. Not to mention the gorgeous weather and Liam being on school vacation. It was going to be a week of much needed family time. But, if I have learned anything in the past few months it is not to make plans more than a day in advance.

As with any good roller coaster, in order for there to by highs there have to be lows. This week has been one of them. The high dose chemo and 6 1/2 weeks of radiation has really taken a toll on Mac's body. We went in for his last day of radiation on Wednesday to find he needed a blood transfusion, his numbers has fallen incredibly low, and he spiked a fever. He was admitted. We found out he also had c-diff and thrush. He had not eaten or drank anything in over a week. He has lost almost 15 lbs since the beginning of treatment in February. Seeing him lying in the bed feeling so miserable and looking so frail is heartbreaking. The worst of it being the knowledge the that as bad as this week has been it is no where near how bad things will eventually.

The plan now is for Mac to regain his strength so he can return home and schedule surgery for the placement of a g-tube. Mac returns for another round of chemo on April 30th. Hopefully, he will have some time home in between to give his emotions and body a break.

Please continue to pray for a miracle for Mac and for us to continue to have the strength to not just get through each day but to be able to see how lucky we are to have such great care for Mac and such supportive family and friends. Please especially keep us in mind on the 24th when Mac goes for his MRI to see if the radiation and chemo is being effective in treating the tumor.


"And when it rains on your parade, look up rather than down. Without the rain, there would be no rainbow."
-Gilbert K. Chesterton




5 comments:

  1. We are all praying right aside of you....on your roller coaster ride. Miracles happen. Miss you at school Mac!! Love Mrs. Ruggiero

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  2. With all the highs and lows, know that the Scales Family is thinking of you. Mac, you are in our thoughts and prayers, as well as your family. Stay strong, buddy!! Mrs. Scales & Tyler(your church buddy)

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  3. We're still here Beck, fighting with you guys every step of the way! xo

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  4. Thank you Becky for continuing to share this difficult journey with us. I hope that on this torturous ride that Mac will soon be on the upswing. And yes, prayers continue for that miracle!

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  5. STUPID cancer is really not for those that are planners! It took me several "unplanned" admissions to be convinced to keep a bag packed at all times!
    I hope Mac is feeling a little better today, and that the g-tube will help him. if they mention TPN, don't let that scare you - it was a wonderful thing for my son (he was not able to eat or take formula at all)

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