We have been having a wonderful week again with Mac. He is up and about and feeling good. He continues to improve daily and smiles more often. We were given a special gift on Sunday and were able to take the boys to their first Red Sox game! We went on a tour of Fenway which was fantastic. We were even able to watch batting practice from the field. The boys had an amazing time and so did Billy and I! It was so nice to forget about meds, IV's and cancer for an afternoon and pretend to be the family we were prior to January 17th. Some days are easier than others to pretend we will some day be able to return to our normal lives when the fact is our normal will never be the same. We have seen too many hurting children and met too many families broken by this disease to ever go back to who we were. Before I would have not given a second thought to people paying $40,000 each to have lunch with the President, now it makes me so angry that families have to beg friends for money and children sell lemonade to fund research for Pediatric Cancer. This just seems so wrong.
Liam is enjoying his vacation. I was so proud of him taking the past couple of rainy days to finish one of his Summer reading books. It is usually such a battle to get him to sit down with a book. I can still see the anxiety on his face over his brother's future but being home seems to have lightened it a bit.
The MRI is scheduled today at 2:45. Thank you for all the prayers and thoughts!
So glad that you had a wonderful time at Fenway and saw a great game. Prayers continue.
ReplyDeleteMac, Becky, Billy, Liam, Nana, Grandma, Grandpa, Aunties, Uncles,
ReplyDeleteThinking of you all today and hoping for the best possible outcome.
Love,
Cousin Carragh