June 8, 2012

Mac has completed 4 of the 5 days of chemo. He will finish up tonight and hopefully be home tomorrow. So far things have been going great (knock on wood)! Mac has been sleeping a lot in the hospital. He took a 6 hour nap the other day. I think this is helping him recover a lot. His little body has been through so much I think the sleep is what he needs. We were doing his mouth care yesterday. Which is cleaning his mouth with little sponges with saline water at least 3 times a day. He ha s come to greatly dislike this part of his days. When he spit yesterday a tooth came out! He was so excited the tooth fairy was going to come. The child life specialist came in and brought him some spy gear, which is a little handheld thing that shoots nurf like discs. He was thrilled! Dad came in last night to spend the rest of his stay with him and his face just lit up! He LOVES spending time with his dad. All in all this is been a really good week for Mac, considering all the chemo has been getting. His spirits are high and he is still smiling so we couldn't ask for more.

Liam is holding up well. He is so excited for school vacation and I have to admit I am too! I cannot wait to spend whole days doing nothing but spending time with my boys.

I am having a much better week this week. Last week was rough. I had a bit of a breakdown after hearing of the passing of one of the kids we met through clinic. I am finding this the hardest part. It is as if a piece of my heart breaks with every one I learn about. My heart breaks for the families and friends of these remarkable children and my fear grows for the future of my own. It was different when just reading statistics of glioblastoma   multiforme because I would always just say "but that isn't my Mac". Now as I see these strong, courageous children become angels I know that each and every one of them is somebody's "Mac".

Please continue your prayers for all the children, families and friends who lives have been affected by this awful disease. Thank you all for your continued support. I could never express how much it means to know that people are thinking about and praying for Mac. Thank you all for being my light.